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Heart Diseases: Young People

Question for Department of Health and Social Care

UIN 21640, tabled on 3 January 2025

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of rolling out cardiac screening to young people.

Answered on

8 January 2025

The UK National Screening Committee (UK NSC) last reviewed screening for sudden cardiac death (SCD) in people under 39 years old in 2019 and concluded that screening should not be offered. More information on the review is available at the following link:

https://view-health-screening-recommendations.service.gov.uk/sudden-cardiac-death/

Research showed that current tests are not accurate enough to use in young people without symptoms, and that treatments and interventions were not based on good scientific evidence to prevent SCD.

To stop SCDs in young people, the current consensus is to focus on rapid identification and care of people who are likely to be at risk of SCD due to a family link or because they have had symptoms, and to train people to carry out cardio-pulmonary resuscitation and to use defibrillators.

NHS England has published guidance for inherited cardiac conditions which requires services to investigate patients with previously undiagnosed cardiac disease, suggestive symptoms or from families with sudden unexplained deaths. Where a genetic variation is identified, cascade testing is offered to relatives based on risk.

We are aware that the UK NSC has received a submission via its annual call process to consider SCD screening in young people aged between 14 and 35 years old engaging in sport. The UK NSC is currently reviewing all annual call proposals. More information on the annual call process is available at the following link:

https://www.gov.uk/government/publications/uk-nsc-annual-call-submitting-a-screening-proposal/uk-nsc-annual-call-how-to-submit-a-proposal

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