Fibrodysplasia Ossificans Progressiva

Question

While there is no specific prescribed service for fibrodysplasia ossificans progressiva (FOP), children with the condition are cared for by National Health Service paediatric rheumatologists and/or geneticists with input from other clinicians as required. For patients with rare diseases such as FOP, expert centres provide clinical guidance, support and advice to patients, their families, and carers.