To ask the Secretary of State for Science, Innovation and Technology, whether she has had discussions with the Secretary of State for Health and Social Care on progress on the actions in the England Rare Diseases Action Plan on the effectiveness of current incentives for innovation in rare diseases.
Answered on
11 July 2023
While direct discussions have not yet taken place, officials in the Office for Life Sciences, a joint unit between the Department for Science, Innovation and Technology and the Department of Health and Social Care, are working closely with officials in the Department of Health and Social Care, who are leading on delivery of the England Rare Diseases Action Plan, to ensure that innovations are utilised for the benefit of patients with rare diseases. This includes joint attendance at ministerial and working level delivery meetings, as appropriate.