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Rare Diseases

Question for Department of Health and Social Care

UIN HL8001, tabled on 27 April 2022

To ask Her Majesty's Government what steps they are taking to ensure the standards set out in NHS service specifications for rare and complex diseases, such as cystic fibrosis, are adhered to; and to what extent these represent a statutory expectation of care that patients should expect to receive at a minimum.

Answered on

28 April 2022

It has not proved possible to respond to this question in the time available before Prorogation. Ministers will correspond directly with the Member.