To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that people are able to retain control of their own patient GP data when interacting with NHS Digital and the General Practice Data for Planning and Research programme.
This answer is the replacement for a previous holding answer.
Answered on
6 September 2021
Patients have the ability to opt-out of the new General Practice Data for Planning and Research (GPDPR) programme and the dataset will always reflect their current preference.
We have committed to starting the collection of data only once a number of tests have been met. A patient’s data will be deleted should they choose to opt-out of sharing their data with NHS Digital, even if this is after their data has been uploaded. This work is ongoing and further plans for the GPDPR programme will be announced in due course.