To ask the Secretary of State for Health and Social Care, what steps his Department is taking to invest in specialist Tourette’s syndrome services and care across (a) St Helens Clinical Commissioning Group area, (b) the North West region and (c) England.
This answer is the replacement for a previous holding answer.
29 June 2021
The majority of services for people with Tourette’s syndrome are commissioned locally by clinical commissioning groups (CCGs), through local community paediatric services or child and adolescent mental health services, with the pathways varying across the country. These services will be appropriate for the majority of children and young people with Tourette’s syndrome.
For those requiring specialist support, there are specialised tertiary services across the country with focused multidisciplinary teams assessing and supporting children with tics, Tourette’s syndrome and motor stereotypies and their families. The potential commissioning of a local tertiary service for tics and Tourette’s is under review by CCGs across the North West and NHS England and NHS Improvement.
NHS St Helens CCG has tasked its local providers to review the needs of children and young people from St Helens who have been discharged from Alder Hey Children’s Hospital’s Tourette’s service in the preceding six months and has temporarily invested £30,000 to support this.