Skip to main content

National Cancer Registration and Analysis Service

Question for Department of Health and Social Care

UIN 130756, tabled on 16 December 2020

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 4 November to Question 105411, what charities the National Cancer Registration and Analysis Service has met and (b) when have those meetings took place.

Answered on

11 January 2021

Public Health England has been sharing provider-level data on the completeness of recurrence reporting with individual National Health Service trusts since July 2016. This is accepted as being significantly below the estimated number of secondary breast cancers. The latest data with figures covering 2014 to 2018 was published in November 2020 and are available at the following link:

http://www.ncin.org.uk/cancer_type_and_topic_specific_work/topic_specific_work/recurrence

Since 2019, the National Cancer Registration and Analysis Service (NCRAS) has discussed recording of recurrence data with Breast Cancer Now, formerly Breast Cancer Care, Cancer52, Pancreatic Cancer UK, National Audit of Breast Cancer in Older People National Bowel Cancer Audit Macmillan, Cancer Research UK and the developers of the NHS England Cancer Waits Dataset.

NCRAS works closely with cancer service managers at hospital trusts to determine sources of data which can be used to complete the Cancer Services and Outcomes Dataset (COSD) items. The NCRAS Data Liaison team provide direct support to hospital providers to improve their ability to collect data. This includes system procurement support, review of COSD data, clinical engagement and data reporting and validation.

Answered by

Department of Health and Social Care