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Chronic Fatigue Syndrome

Question for Department of Health and Social Care

UIN HL11441, tabled on 14 December 2020

To ask Her Majesty's Government why Chronic Fatigue Syndrome (CFS) is not listed on the topics covered by the NHS Clinical Knowledge summary; who authorised the decision to combine CFS with “Tiredness/fatigue in adults”; and when that change was made.

Answered on

29 December 2020

The National Institute for Health and Care Excellence (NICE) Clinical Knowledge Summary Tiredness/fatigue in adults was published in October 2009 and there has been no change in the way it is titled over the subsequent period. NICE advises that the inclusion of Chronic Fatigue Syndrome (CFS) within the tiredness/fatigue topic is to ensure that clinicians will consider CFS as a potential diagnosis as early as possible in the course of care of a person presenting with symptoms of tiredness and fatigue.

In 2007 NICE published the guideline, Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management. This is currently being updated and a draft guideline is out for consultation with the final guidance expected in April 2021. The CFS diagnosis and management sections in the Clinical Knowledge Summary on Tiredness/Fatigue are kept in line with NICE guidance on CFS and will be updated following publication of the new guidance if necessary.