Skip to main content

Neurofibromatosis: Pupils

Question for Department for Education

UIN 87685, tabled on 9 September 2020

To ask the Secretary of State for Education, what steps he is taking to ensure that schools are aware of the social, psychological and health problems that pupils with neurofibromatosis 1 may have.

Answered on

17 September 2020

The government is committed to pupils with medical conditions being properly supported at school so that they have full access to education.

In 2014, the government introduced a new duty on schools to support all pupils with medical conditions and has published statutory guidance on this for schools and others. The guidance is available at:

The guidance does not specify which medical conditions should be supported in schools. Instead, it focuses on how to meet the needs of each individual child and how their medical condition impacts on school life.

Governing bodies must ensure that arrangements are in place in schools to support pupils at school with medical conditions, and that school leaders consult health and social care professionals, pupils and parents to ensure that the needs of these children are properly understood and effectively supported.