To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help raise awareness of Huntington's disease.
17 May 2019
Huntington’s disease is a rare inherited progressive disorder that causes motor, cognitive, and psychiatric signs and symptoms.
The United Kingdom Rare Disease Strategy, published in 2013, is a high-level framework committed to raising awareness about all rare diseases, such as Huntington’s disease, and sets out a strategic vision for improving the lives of all those affected.
Steps to increase awareness of rare conditions are being taken through the implementation of the Strategy. The Department published an update to its implementation plan to achieve the commitments in the Strategy in England on 27 February 2019.