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Question for Department of Health and Social Care

UIN 216384, tabled on 4 February 2019

To ask the Secretary of State for Health and Social Care, if he will hold meetings with families of children with ceroid lipofuscinosis type 2 disease on the availability of Brineura on the NHS.

Answered on

12 February 2019

The Department has no plans currently. The National Institute for Health and Care Excellence is currently developing guidance on Brineura (Cerliponase alfa) for treating neuronal ceroid lipofuscinosis type 2 under the highly specialised technology programme. Further information can be found at the following link:

Answered by

Department of Health and Social Care