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Mast Cell Activation Syndrome

Question for Department of Health and Social Care

UIN 129386, tabled on 23 February 2018

To ask the Secretary of State for Health and Social Care, what assessment he has made of the accuracy of the coding of diagnoses of Mast Cell Activation Syndrome on NHS systems.

Answered on

5 March 2018

NHS England does not have any current plans to assess the coding of National Health Service care for patients with Mast Cell Activation Syndrome.

In response to the commitments outlined in the UK Strategy for Rare Diseases, NHS England published the Rare Diseases Implementation Plan in which it proposed to monitor the development of International Classification of Diseases (ICD)-11 and support the accurate characterisation of patients through Human Phenotype Ontology terms as being developed through the 100,000 Genomes Project.

More information about the NHS England Rare Diseases Implementation Plan can be found here: