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Chronic Fatigue Syndrome

Question for Department of Health

UIN HL3499, tabled on 22 November 2017

To ask Her Majesty's Government when the Chronic Fatigue Syndrome/Myalgic Encephalomyelitis National Outcomes Database ceased to exist; and why the data included in that database is no longer collected.

Answered on

1 December 2017

The chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) National Outcome Database was developed by three NHS Clinical Network Co-ordinating Centres in 2006 and managed by Bristol University. Its development was part of a wider initiative to establish services for CFS/ME in the National Health Service at the time. Neither the Department nor NHS England has oversight of it, or responsibility for it.