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Down's Syndrome

Question for Department of Health

UIN HL3714, tabled on 30 November 2016

To ask Her Majesty’s Government what is their response to the Royal College of Obstetricians and Gynaecologists' submission to the UK National Screening Committee concerning the case for making a rigorous analysis of the lifetime costs of caring for children and adults with Down's Syndrome.

Answered on

12 December 2016

The cost analysis considered by the UK National Screening Committee (UK NSC) related solely to providing choice and did not take into account the lifetime costs of caring for children and adults with Down’s syndrome.

Thirty stakeholders responded to the UK NSC’s consultation, including the Royal College of Obstetricians and Gynaecologists. The UK NSC considered carefully all the responses to the consultation. However, as is standard practice there are no plans to respond to individual representations.