To ask the Secretary of State for Health, when he last met the Sickle Cell Society; and if he will make a statement.
8 December 2014
Genetic Alliance UK, of which the Sickle Cell Society is a member, are represented on the Department’s UK Rare Disease Forum, which meets regularly to discuss issues of United Kingdom rare diseases policy and to monitor the implementation of the UK Strategy for Rare Diseases.
There have been no recent direct discussions between my Rt. hon. Friend the Secretary of State for Health and the Sickle Cell Society.