To ask the Secretary of State for Health, how many babies were born with VLCAD deficiency in the UK in the last year for which figures are available; and what proportion of those babies died within the first seven days.
28 November 2014
The UK National Screening Committee (UK NSC) advises Ministers and the National Health Service in all four countries about all aspects of screening policy and supports implementation.
The UK NSC is currently reviewing newborn screening for very long chain acyl CoA dehydrogenase deficiency (VLCADD) against its internationally recognised criteria. A public consultation on the screening review opened on 21 November 2014 and will close on 23 February 2015. A copy of the consultation is available at
Data on the number of babies born with VLCADD deficiency in the UK and data on the number of babies who died within the first seven days from the disorder is not held centrally.