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Congenital Myasthenic Syndrome

Question for Department of Health

UIN 206798, tabled on 21 July 2014

To ask the Secretary of State for Health, what discussions he has had with the British Medical Association on the prescribing of salbutamol to treat congenital myasthenia.

Answered on

4 September 2014

Ministers have had no such discussions.

Salbutamol is not licenced for the treatment of congenital myasthenia. Doctors can prescribe a medicine outside the terms of its licence if this best meets the clinical need of an individual patient and on condition that they retain full clinical responsibility for that patient.